Zuzia

27 October 2012

Warsaw, Poland

Zuzia is a girl with albinism, and attends a school for partially sighted children in Warsaw. She dreams of meeting someone like herself.

 

Albinism is caused by a recessive gene (passed to a child by both parents) that deprives the skin, hair, and eyes of pigment. This can cause serious eye problems.

Because pigment plays a role in protecting the skin from ultraviolet radiation, people with albinism are highly susceptible to the adverse effects of overexposure to sunlight.

Zuzia, atteinte d’albinisme, est scolarisée dans une école pour malvoyants à Varsovie, en Pologne. Elle rêve de rencontrer quelqu’un comme elle. L’albinisme, causé par un gène récessif transmis à un enfant par ses deux parents, prive la peau, les cheveux et les yeux de pigment. Ceci peut entraîner de sérieux problèmes de vue. La pigmentation protégeant la peau des rayons ultraviolets, les personnes atteintes d’albinisme sont très sensibles aux effets nocifs de la surexposition à la lumière du soleil.

Location

Warsaw, Poland

Technical information

Shutter speed: 1/125 sec
ISO: 100
F-Stop: 7.1
Focal Length: 50 mm
Canon EOS 5D Mark II
Camera: Canon EOS 5D Mark II

Anna Bedyńska
Nationality:
Poland
About:
Anna Bedyńska is a documentary photographer based in Poland who touches and overcomes taboo subjects. Her main concentration is social change. She pays special attention to the situation of women in the modern world. One of the biggest honors of her work was entering the world of parents waiting for their child to be born. She assisted many deliveries, which resulted in an exhibition that traveled throughout Poland and abroad. She is a staff photographer at Gazeta Wyborcza and has received several prizes in press photo contests.
Commissioner:
Gazeta Wyborcza