Zuzia

27 October 2012

Zuzia ist ein Mädchen mit Albinismus, das eine Sehbehindertenschule in Warschau, Polen, besucht. Sie träumt davon, jemanden zu treffen, der so ist wie sie.

Albinismus wird durch ein rezessives Gen verursacht, das von beiden Eltern an das Kind weitergegeben wird. Haut, Haare und Augen sind ohne Pigment, was zu ernsten Augenproblemen führen kann.

Da Pigment eine wichtige Rolle beim Schutz der Haut vor ultravioletter Strahlung spielt, reagieren Menschen mit Albinismus sehr empfindlich, wenn sie zu lange dem Sonnenlicht ausgesetzt sind.

Warsaw, Poland

Zuzia is a girl with albinism, and attends a school for partially sighted children in Warsaw. She dreams of meeting someone like herself.

Albinism is caused by a recessive gene (passed to a child by both parents) that deprives the skin, hair, and eyes of pigment. This can cause serious eye problems.

Because pigment plays a role in protecting the skin from ultraviolet radiation, people with albinism are highly susceptible to the adverse effects of overexposure to sunlight.

Zuzia es una albina. Acude a un centro para niños con deficiencia visual en Varsovia, Polonia. Sueña con conocer a alguien como ella.

El albinismo se debe a un gen recesivo, que ambos padres pasan al niño, y que se caracteriza por una ausencia congénita de pigmentación en la piel, el cabello y los ojos, y puede provocar graves problemas en la vista.

Ya que el pigmento desempeña un papel importante en la protección cutánea de los rayos ultravioleta, los albinos son susceptibles de sufrir los efectos adversos de la sobreexposición al sol.

Zuzia, atteinte d’albinisme, est scolarisée dans une école pour malvoyants à Varsovie, en Pologne. Elle rêve de rencontrer quelqu’un comme elle.

L’albinisme, causé par un gène récessif transmis à un enfant par ses deux parents, prive la peau, les cheveux et les yeux de pigment. Ceci peut entraîner de sérieux problèmes de vue.

La pigmentation protégeant la peau des rayons ultraviolets, les personnes atteintes d’albinisme sont très sensibles aux effets nocifs de la surexposition à la lumière du soleil.

Zuzia è una ragazza affetta da albinismo e frequenta una scuola per bambini ipovedenti a Varsavia, in Polonia.

 

Sogna di incontrare qualcuno come lei. L’albinismo è causato da un gene recessivo, passato al bambino da entrambi i genitori, che depigmenta pelle, capelli e occhi, mettendo questi ultimi a rischio di gravi problemi. Dato il ruolo fondamentale svolto dal pigmento nella protezione della pelle dai raggi ultravioletti, gli albini sono estremamente sensibili agli effetti negativi di un’eccessiva esposizione alla luce solare.

Zuzia is een albino en zit op een school voor slechtziende kinderen in Warschau, Polen. Ze droomt ervan ooit iemand als zichzelf tegen te komen.

Albinisme kan ernstige oogklachten veroorzaken. Het ontstaat door een recessief gen, dat door beide ouders aan het kind wordt doorgegeven, en dat een pigmenttekort in huid, haar en ogen veroorzaakt.

Omdat pigment de huid tegen ultraviolette straling beschermt, zijn albino’s uiterst gevoelig voor de nadelige effecten van een te lange blootstelling aan zonlicht.

Zuzia é uma rapariga com albinismo e frequenta uma escola para crianças com visão parcial em Varsóvia, na Polónia.

 

O seu sonho é encontrar alguém como ela. O albinismo é causado por um gene recessivo (transmitido a um filho por ambos os pais), que impede a pigmentação da pele, do cabelo e dos olhos. Isso pode causar problemas oculares graves. Visto que a pigmentação desempenha um papel na proteção da pele contra as radiações ultravioletas, as pessoas com albinismo são extremamente vulneráveis aos efeitos adversos da sobrexposição à luz solar.

Location

Warsaw, Poland

Technical information

Shutter speed: 1/125 sec
ISO: 100
F-Stop: 7.1
Focal Length: 50 mm
Canon EOS 5D Mark II
Camera: Canon EOS 5D Mark II

Anna Bedyńska
Nationality:
Poland
About:
Anna Bedyńska is a documentary photographer based in Poland who touches and overcomes taboo subjects. Her main concentration is social change. She pays special attention to the situation of women in the modern world. One of the biggest honors of her work was entering the world of parents waiting for their child to be born. She assisted many deliveries, which resulted in an exhibition that traveled throughout Poland and abroad. She is a staff photographer at Gazeta Wyborcza and has received several prizes in press photo contests.
Commissioner:
Gazeta Wyborcza